About

Hello! And welcome to our little corner in the blogging world.

We are a humble little family of three, plus one energetic dog and one downright malevolent cat, living on the east coast of Ireland. Our son, henceforth known as R, has been diagnosed with ASD (Autism Spectrum Disorder), SPD (Sensory Processing Disorder) and CP (Cerebral Palsy). R is four years old and probably the funniest, most loveable little guy you’ll ever meet. He has plenty of personality and currently loves (and by loves, I mean lives and breathes) windshield wipers, Peppa Pig and Volkwagen Golfs. In no particular order. He enjoys bubble baths, muddy puddles and indepth vehicle tours on YouTube. Never a dull moment in our house, I can assure you!

I created this blog to share our journey with R, and hopefully shed a light on what it is like to live and love a child with complex needs. We strive for happiness, not perfection. Smiles, not scores. We love R for who he is, not what he has. We homeschool. We play a lot. We cry a lot, but we laugh more. We laugh more as we realise that life is much more than therapy appointments, missed milestones and shoulda, woulda couldas.

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6 thoughts on “About

      • Awh! He’s a doll! I’m looking to branch out too but I really like to help the parents and kids alike who get this diagnosis and don’t know what to expect.

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      • Ahh thank you 🙂 I think it’s really admirable of you to do that as a lot of parents are left with a diagnosis and told to ‘look it up’. We’re still not sure if it truly is CP that R has, just that his presentation is unique and they want to wait and see. He has extreme tightening of his achilles and calves so basically, even when he tries to stand he can’t stand straight or off his toes. Serial casting failed, so now we’re waiting for a walking frame for him, fingers crossed!

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      • Good luck! I’m not a “textbook” diagnosis of CP so I can understand and thus “looking it up” has been both scary and mostly useless for me. I know I can’t be the only one who felt that and hope to be a resource for Parents

        Liked by 1 person

  1. Your little boy sounds awesome! (Hard work too I’d imagine, but awesome all the same)
    Very PDA in his hatred for sand timers and visuals. I’m actually quite lucky as basic visual timetables work for Dinks and we have some sucess with a visual traffic light timer, other times I find she has paused the timer or turned it off to play more disney infinity, how she does it… I don’t know…
    Glad you found my blog.. And that it led me to yours.

    Liked by 1 person

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